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ASTHMA STORIES THAT HAVE DIRE CONSEQUENCES FOR THE SUFFERER

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Two Lead Stories lately (the “asthma stories”) were by far the most-suggested stories by readers recently. I think every one of them just suggested one or the other, and they probably didn’t know about the other. The two stories, which happened about a week apart, and about 165 miles apart, are pretty amazing together.

But let’s not just point at Texas: it happens all over. And I’m certainly not being overly dramatic by saying this can be a life or death situation. Ryan Gibbons, 12, of Straffordville, Ont., Canada (you know ZT is international, right?) died October 9, 2012, because his school wouldn’t let him carry his inhaler with him. They literally took it away from him.

Ryan’s mother campaigned for a new law to force schools to allow kids to have their inhalers with them. It took three years, but Ontario passed it — and apparently Ontario is still the only Canadian province to have such a law. It’s called “Ryan’s Law”. Yet “There are still school boards all across this country and schools within those boards that don’t allow children to carry their puffers,” said Rob Oliphant, president of the Asthma Society of Canada. “It’s usually part of a blanket understanding of medications, so they say medications are unsafe, they have that idea in their head, so they lock them up in the principal’s office.”

Bryant Elementary School in Philadelphia, Pa., did not allow Laporshia Massey, 12, to have her inhaler. Worse, students there are not allowed to take medications without a school nurse present. You guessed it: there was no nurse on duty on September 25, 2013, when Massey had an asthma attack. Rather than call 911, the school took the girl home, where she died. Her parents sued the school.

Those are just two cases I found in a quick search: there are more. “Certainly as a doctor we think about controlled substances like narcotics or illegal or illicit drugs like marijuana and they are nowhere near the same category,” says Dr. Gary Weinstein, director of the Asthma Management Program at Texas Health Presbyterian Hospital in Dallas, commenting on the Garland case. Yet schools freak out because inhalers are “drugs” and we must “Just Say No!” to “drugs” because that’s the zero tolerance way. Meth and cocaine are not the same as albuterol inhalers, which “have little potential for abuse,” Weinstein says. Yet after all these years — and death after death — schools can’t seem to grasp the difference. A drug is a drug is a drug.

The nurse at Volusia County (Fla.) School watched as Michael Rudi, 17, collapsed on the floor from an asthma attack. He had made it to the office in time, but the nurse wouldn’t give him his inhaler because she didn’t find a medical release form signed by a parent. His inhaler was there, in its original packaging with Michael’s name on it (and his doctor’s!), yet without that form they wouldn’t give it to him. They called his mother, but she was not allowed to give permission over the phone; she had to come to the school and sign the form. “As soon as we opened up the door, we saw my son collapsing against the wall on the floor of the nurse’s office while she was standing in the window of the locked door looking down at my son, who was in full-blown asthma attack,” Sue Rudi says. She barely got there in time: her son lived. “I believe that when I closed my eyes I wasn’t going to wake up,” the boy said later. He was sure he was going to die.

Cheryl Selesky, the district’s Director of Student Health Services, insisted it was Michael’s parents’ fault for not being sure a new signed form was on file — none of the forms they had signed for the previous school years were good enough. Following her rule was more important than Michael’s life. The school couldn’t even be bothered to call 911. And that’s with a trained nurse present!

Kids need to be part of their own healthcare: they know when they need life-saving medications, and teachers and school administrators have no business butting in and taking those medications away. Having them locked up in the school office is no substitute even when there is a nurse on duty. Kids with medical problems have enough problems with bullies among their fellow students. To institutionalize the bullying by making kids gasping for breath walk or be carried to the office to beg for life-saving medications, because they’re “controlled substances” not differentiated from marijuana, is absurd, and not in the best interest of the kids, society, or the taxpayers who have to foot the bill when the schools are sued over their gross negligence, allowing — even forcing — the deaths of the pupils in their care. It’s downright sadistic.

U.S. News and World Report magazine reported in 2012 that “all 50 states have laws that allow children with asthma to carry inhalers at school and 48 states have laws that let youngsters carry epinephrine pens for serious allergies,” yet “experts say that some kids are still being denied access to these lifesaving medications during the school day.” Obviously, in 2016 that’s still the case.

When school officials get in the middle of the care between a child and their doctors, those school officials need to be personally liable for their decisions: no hiding behind “policy” or “zero tolerance” whether there’s a law or not. They need to be sued and lose their jobs and homes, and local authorities should consider criminal charges — and prosecutors should press for prison time. Hell, that happens all the time when people treat animals that way, so why don’t we press charges when school administrators treat children this way? This crap needs to stop, and right now: there is no reason for these children to suffer, even die, when help is so easily available.

OOO

Henry Sapiecha

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